Patient Voices
Informed patients are healthier patients.
Hear directly from patients about why access to information matters to them.
Jeanette
Jeanette is a chronic disease patient. She takes a proactive approach to managing her condition and values access to information, from conversations with her doctor to media and advertising, that help her learn about new treatment options.
Tina
Tina was diagnosed with a chronic disease as a sophomore in college, navigating the disease earlier in life than many patients. She stays informed through support groups, online research, and emerging technologies, believing that broader access to information helps patients better understand their options.
John “CZ” Czwartacki
CZ was diagnosed with a chronic disease nearly thirty years ago. He wants policymakers to know that he’s not a consumer – he is a patient with the right to freely access the most up-to-date information, enabling him to make informed decisions about his health.
Trayon
Trayon was diagnosed with multiple sclerosis nearly fifteen years ago, just before his 23rd birthday. He actively researches new treatments and believes that having access to as much information as possible empowers patients to make informed decisions about their care.