Strengthening Patient Power

OUR MISSION

The mission of the Informed Patients Project (IPP) is to protect transparency in health care information sharing and ensure patients can make the most informed decisions about their care. We advocate for policies and solutions that prioritize the free flow of information regarding food, medicine, and science, empowering American patients with the knowledge they need so they can make the best health decisions for themselves and their families.

OUR VISION

The Informed Patients Project strives to build a future where every American can live their healthiest life, supported by open access to the information and resources they need to make smart choices about the food they eat, the medicines they take, and the science that guides independent decision-making about their health. We envision a health care system where transparency is standard, patients and families are active participants in their health, and policies and solutions are created with the best interests of the American people.

Protecting the free flow of health information

Empowering patients to be active participants in their care

Advocating for policy solutions that put patients first

MEET OUR EXECUTIVE DIRECTOR

John “CZ” Czwartacki is the Executive Director of the Informed Patients Project (IPP).

CZ is uniquely aware of the powers of transparency in health care. John was diagnosed with Multiple Sclerosis (MS) in 1993 – before there was a single treatment available to slow the progression of his disease. In the decades since, advancements in medical innovation have brought treatments and therapies to the healthcare system, and the free flow of health information has empowered CZ to learn about new care options as they become available. Through the Informed Patients Project, CZ will continue to advocate for policy solutions that put information sharing and the patient experience first.

CZ has thirty years of experience in public policy and the private sector. Formerly, CZ served in the federal government as Public Affairs Director for the Federal Emergency Management Agency (FEMA) in the George W. Bush administration, Communications Director for the Office of Management and Budget (OMB) under President Trump’s first administration, and Chief Communications Officer for the Consumer Financial Protection Bureau (CFPB). CZ also served in the legislative branch as Press Secretary for Congressman John Boehner, Communications Director for the Chairman of House Leadership, Bill Paxon, and Press Secretary for Senate Majority Leader Trent Lott.

Since serving in the first Trump administration, CZ has taken on a number of public advocacy projects. He has harnessed his patient experience to inform his advocacy as he seeks policy solutions that improve the health care experience for others like him.